How is progeria inherited
Progeria life expectancy.
Hayley Okines
British activist with progeria (1997–2015)
Hayley Leanne Okines (3 December 1997 – 2 April 2015) was an English author and activist who was a sufferer of the extremely rare aging disease progeria.[3][4] She was known for spreading awareness of the condition.
Progeria adults
Although the life expectancy for those with the condition is 13 years, Okines was part of a drug trial that had seen her surpass doctors' predictions of her projected lifespan. She died on 2 April 2015 at the age of 17, having lived four years beyond doctors' initial predictions.[5]
Okines was diagnosed with progeria at the age of two,[6] and doctors put her projected lifespan at thirteen years.[7] She frequently travelled to Boston in the United States to receive new treatments.
In 2012, her autobiography, titled Old Before My Time, was published;[8][9] it was co-authored by Okines, her mother Kerry, and contributor Alison Stokes.